Tonight I am writing this post...from our house! Cayden was discharged today after 18 days of being inpatient. He was so excited and all morning he couldn't stop saying how he couldn't wait to be home. No more beeping IVs, nurses in and out, trips back and forth, uncomfortable sofa sleepers or cafeteria food to eat.
We are home.
Until we see our regular pulmonologist we are also going home with hypertonic saline nebulized twice a day, a 14 day cycle of TOBi nebulized twice a day, Flovent (inhaled steroid) to decrease inflammation, albuterol inhaler before physical activity, and nasal mist. If he seems to still be coughing after we finish the prednisone on Monday we will talk to the clinic about a steroid nasal spray. I think if I count right that's a lot of steroids. Poor guy, but he is doing so great even with all these extra changes to his meds.
I can't say that we were "sad" to leave, but it helped a lot that our regular nurses and RTs weren't there since it was the weekend. But we couldn't leave and not let the staff know how much their care meant to us. I asked Cayden to write a note in the thank you card with a bouquet of flowers we picked from home.
Happy Father's Day tomorrow! Enjoy those you love the most.