Confessions of a Youth Minister and CF Mom : Open House=HUGE SUCCESS!

Saturday, March 26, 2011

Open House=HUGE SUCCESS!

Our first open house/kick off went so well.

-30 people were served!
-2 new walkers registered
-4 bookings were set up for tastings
-$1,149 in products were purchased
I was impressed with the turn out. The good food. The money we made for CF while enjoying all the above (note to self: ~$200!!!!) A huge success!!!!!

Check out the picks from Wild for a Cure HERE.

We also shared with our supporters this year's t-shirt design made by one of our parish's very own alum, Jade Ashburn.

Jade is incredibly talented and created a design that captures it all!

We decided the shirt color should be Irish Green in the theme of the clover image and donning a Topel Family pic on the back.

Cost is $10 for adults, $7 for youth sizes ($1 from each shirt will go towards our fundraiser:))!
You can order one even if you can't walk.
I will be putting in our first order this week Wednesday.

1 comment:

CatherineJune 28, 2011 at 7:47 AM
just reading your blog again and thinking about how much work your life is. Please start a Helping Hands for your crazy time - treatments/dinner/bed. Could be perfect.
love to you...Catherine
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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.