Confessions of a Youth Minister and CF Mom : A 4 Year-Olds Prayer Intentions

Sunday, March 6, 2011

A 4 Year-Olds Prayer Intentions

Last night (as we do most all nights) I asked Colin and Trinity who we should pray for.

These were Colin's prayer intentions/requests (in order...)
+For all the kids in the world who have CF like Cayden, Trinny and Cooper. So they don't have to do all that "stuff."
+For Connor so he doesn't have to get fed by that tube (he meant his feeding tube) and so he will feel better.
+For Catherine Tackman who has the same thing Connor has.
+For Treyton.
+For Grandpa M & M (my grandpa who just passed away Thursday night. They call my grandparents "M & M" because they always bring a package of their favorite candy when they visit).

And I added a prayer intention of my own. For all the kids like you Colin who live with kids that have CF.

What a sweetie!

1 comment:

Happy in the MiddleMarch 6, 2011 at 5:03 PM
Wow, what an amazing little boy you have!!
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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.