Cooper's appointment today was a great one! Weight gain up and almost to 18 lbs. Not too shabby! His lungs on the other hand, could use some improvement. Dr. Green's suggestion was to try adding rifampin (the fun loving, color everything red antibiotic) to his regime until we find out his culture results early next week.
We thank you for your prayers, for your love and kindness this past year. We love you!
Have a very Merry Christmas.
A Story of Faith, Hope, and Miracles
Thursday, December 23, 2010
Tuesday, December 21, 2010
A Must Have for Every CF Mom
I am a firm believer in sharing new insights so others do not have to figure out things the "hard way." This is just one of those such things.
Squeezable Applesauce
Check out this puppy!

Pure Genius.
I think it was made for me. I am now a squeezable applesauce convert. Fully.
No more spilled applesauce in diaper bags. No more trying to transport to daycare, school, holiday parties, camping. It's perfect for mixing up enzymes before meal time. And if you don't have kids with CF (LUCKY!) these are great snacks on the go. No spoon needed!
I first spotted a version of this at a grocery store months back. But they were pricey. Like $1 pricey. But just a month ago or so I spotted them in Wal-Mart in the check-out aisle for 60 some cents!!!!!
Check out this link to find out where to buy or buy online in bulk!
"O Squeezable Applesauce" (sung to the tune of "O Christmas Tree")
O Squeezable Applesauce! O Squeezable Applesauce!
Thy container is amazing;
O Squeezable Applesauce! O Squeezable Applesauce!
It even reseals for later use;
Not only useful on the go,
But also when we're at home.
O Squeezable Applesauce! O Squeezable Applesauce!
You make enzyme-taking easier!
Squeezable Applesauce
Check out this puppy!

Pure Genius.
I think it was made for me. I am now a squeezable applesauce convert. Fully.
No more spilled applesauce in diaper bags. No more trying to transport to daycare, school, holiday parties, camping. It's perfect for mixing up enzymes before meal time. And if you don't have kids with CF (LUCKY!) these are great snacks on the go. No spoon needed!
I first spotted a version of this at a grocery store months back. But they were pricey. Like $1 pricey. But just a month ago or so I spotted them in Wal-Mart in the check-out aisle for 60 some cents!!!!!
Check out this link to find out where to buy or buy online in bulk!
"O Squeezable Applesauce" (sung to the tune of "O Christmas Tree")
O Squeezable Applesauce! O Squeezable Applesauce!
Thy container is amazing;
O Squeezable Applesauce! O Squeezable Applesauce!
It even reseals for later use;
Not only useful on the go,
But also when we're at home.
O Squeezable Applesauce! O Squeezable Applesauce!
You make enzyme-taking easier!
Saturday, December 11, 2010
Cooper
I hate to say it. But, it's been a while. It's a good kind of while though. Nothing major. Nothing earth-shattering. Nothing too unusual. The kids have healthy other than all running their course on a virus around Thanksgiving time. So, I'd say we're doing pretty well!
Cooper's last weight check-in was at his 6 month well-baby (ok, let's be real here. I I didn't get him there until more like 8 months!). From his previous weight his dietitian is estimating Cooper to be gaining 3/4 of an oz./day (whereas the normal is at least 1 oz.). He has finally crossed the threshold of drinking solely formula. I am sort of biased in favor of breastfeeding through 12 months but let me explain:
a) Cooper was starting to get a bit more interested in bottle feeds.
and b) we can fortify the heck out of formula with less time involved.
Dietitian Erin suggested 5 scoops per 9 oz of water, but when his weight gain still hadn't improved her recommendations went up to 6.5 scoops per 9 oz. And he's still getting plenty of melted butter a top his baby food and cereal (so jealous of him :))! Next weigh in: December 23rd! It's crazy to think that as I try to scrutinize my diet for ways to cut OUT calories I am doing the total opposite for the CF kids.
And I almost forgot to mention he got his first haircut! He is looking more handsome by the day!
Just for fun, here's a walk down memory lane to remember how each of the kiddos looked at this stage. In pictures they stay little forever...
Cayden

Colin

Trinity

Cooper
Cooper's last weight check-in was at his 6 month well-baby (ok, let's be real here. I I didn't get him there until more like 8 months!). From his previous weight his dietitian is estimating Cooper to be gaining 3/4 of an oz./day (whereas the normal is at least 1 oz.). He has finally crossed the threshold of drinking solely formula. I am sort of biased in favor of breastfeeding through 12 months but let me explain:
a) Cooper was starting to get a bit more interested in bottle feeds.
and b) we can fortify the heck out of formula with less time involved.
Dietitian Erin suggested 5 scoops per 9 oz of water, but when his weight gain still hadn't improved her recommendations went up to 6.5 scoops per 9 oz. And he's still getting plenty of melted butter a top his baby food and cereal (so jealous of him :))! Next weigh in: December 23rd! It's crazy to think that as I try to scrutinize my diet for ways to cut OUT calories I am doing the total opposite for the CF kids.
And I almost forgot to mention he got his first haircut! He is looking more handsome by the day!
Just for fun, here's a walk down memory lane to remember how each of the kiddos looked at this stage. In pictures they stay little forever...
Cayden

Colin

Trinity

Cooper
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