Confessions of a Youth Minister and CF Mom : Help Babies with Cystic Fibrosis

Monday, November 1, 2010

Help Babies with Cystic Fibrosis

Trinity helping Dr. Green label Cooper's sputum culture

Pepsi is giving away millions to fund great ideas. Both first and second ranked submitted ideas will be given $250,000 towards their idea. Right now, Cystic Fibrosis is ranked #2. Voting continues until November 30th so vote everyday!

The money will be used for hypertonic saline studies in infants (that's exactly the study Trinity is currently enrolled in).

Take a moment and VOTE NOW!

1 comment:

CarlaNovember 3, 2010 at 5:57 AM
Tiffany -
I love your photos from clinic visits. I miss Dr. Green a lot, but I am blessed to have found a great doctor at Froedtert hospital. I was sad to have to go so far away, but it's where I have found the best adult care.

Dr. Green is a very wise man, and I am glad your kids are in the best hands!

With Love,
Carla
ReplyDelete
Replies

Add comment

Subscribe to: Post Comments (Atom)

Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.