Confessions of a Youth Minister and CF Mom : It's that time

Tuesday, April 12, 2011

It's that time

Tomorrow Cooper goes to clinic for his six week appointment. It's so unusual to be actually looking 'forward' to a CF clinic visit.

But this time, something tells me Cooper is going to rock his weigh-ins. He is getting more solid by the second, I swear!

Tonight, please say an extra prayer for our dear friends the Bourke family. Their almost 12 year old son is facing rough days ahead in his battle with brain cancer.

1 comment:

Einstein's BrainApril 14, 2011 at 10:38 AM
Nice photo, such a handsome little boy! I'll pray for the Bourke family.
I found your profile on "Dreams for Diana", about an orphan with CF. I have been following the Reece's Rainbow charity site for many months now. I also know of one more orphan with CF in eastern Europe, she's younger than Diana.
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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.