Confessions of a Youth Minister and CF Mom : Show your Support!

Thursday, January 6, 2011

Show your Support!

If you have been voting for the CF's Pepsi Refresh grant idea thank you! Continue to vote daily through January 31st by CLICK HERE TO VOTE FOR CF Each month Pepsi Refresh Grant Awards 2 $250,000 grants for the 2 ideas with the most votes.

I am asking the CF community to please also show your support for another cause that is very near and dear to our hearts.

Treyton's family (our school principal's 6 year old son who's life was taken by a drunk driver this past Sept) has a wonderful opportunity to be awarded the $250,000 grant money for the building of a baseball diamond in his honor! CLICK HERE TO VOTE FOR TREYTON'S FIELD OF DREAMS

You can vote 3 ways each day:
Facebook
Email
and Text

1 comment:

The Blackburn BuzzJanuary 7, 2011 at 11:51 AM
Voting daily! I'll try to get Trav to create an account and vote, too. Or, I'll do it for him! ;)

Hugs!
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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.