Confessions of a Youth Minister and CF Mom : Turn Back to Praise!

Thursday, February 4, 2010

Turn Back to Praise!

Every blessing you pour out I'll, turn back to praise! (
Blessed Be Your Name, Redman lyrics)

Sorry for keeping everyone in suspense for the past few days. We received awesome news late yesterday that Trinity did not grow pseudomonas in her latest culture! No more 2 a day nebs!!!

This is a big deal, really, but right now it REALLY is a big deal. Our family will be starting a new chapter on February 15th (my 25th birthday) when Chris goes back to work out of town during the week. I keep thinking to my self..."I am so glad God didn't think I could handle psudomonas by myself!" Thank you Jesus and Mary for answered prayers. Thank You for praying hard. Please continue to pray for this new transition for our family to be a smooth one full of much support from family and friends.

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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.

Thursday, February 4, 2010

Turn Back to Praise!

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