Confessions of a Youth Minister and CF Mom : Happy Birthday America!

Friday, July 3, 2009

Happy Birthday America!

Today is a momentous day. Not only is it the day before the 4th (that would be the 3rd) of July, it is also the day I broke open a blog. I am probably overwhelmed with e-mail and facebook already, but I felt "Holy Spirit" inspired to begin this blog. I am crazy in love with my family and job and I wanted to share how important faith is in my struggles on this journey to holiness. I am no ordinary youth minister or mom. Add the two together and welcome to what I call "unorganized chaos." Just for the record chaos can be organized (true statement). And so begins my blog. Public venting is probably more the word for it. The lyrics to a popular Christian song come to mind:

I got a couple dents in my fender
Got a couple rips in my jeans
Try to fit the pieces together
But perfection is my enemy
And on my own I'm so clumsy
But on Your shoulders I can see
I'm free to be me

1 comment:

UnknownJuly 4, 2009 at 8:32 AM
COOL, can't wait to read on!!!
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Current Meds

Cayden

RespiTech Vest
(airway clearance)

Azithromycin

Ursodiol

Pancreatic Enzymes-Creon 12,000
(4 with meals, 2-3 with snacks)

Pulmozyme 1x daily
(nebulizer)

Source CF chewable vitamin
(bubble gum or grape flavored)

Vitamin D

Ensure Plus (2-3 a day)

Trinity

Zantac

Vitamax liquid vitamin

Pancreatic Enzymes-Creon 12,000
(3 with meals and snacks)

Pulmozyme 1x daily
(nebulizer)

Hypertonic Saline 2x daily
(nebulizer)

Vitamin D

Pediasure Supplement Shakes (2-3 a day)

Cooper
Manual chest therapy
(airway clearance)

Vitamax liquid vitamin

Omeprozal

Pancreatic Enzymes-Creon 6000
(4 with meals and snacks)

Vitamin D

***It's also quite normal that all three would be on some form of antibiotic for 10-14 days.

This is my husband Chris. We met nearly a decade ago at a church retreat. I knew I was going to marry him the day I met him (no joke). We immediately fell in love and found that we had nearly everything in common. We started a list of those things and to do this day I still have the list. Ironically, we also both have genetic mutations for cystic fibrosis. When we were married for just 6 short months we went through a house fire. He rebuilt our lives (and a new home) literally from the ground up in just 6 short months. He is my best friend, a wonderful father, and he gets me through the tough days with his wittiness and sense of humor.

Colin "CW" short for "Colin William" was born in Jan of 2007. Weighing in at 10 lbs even he tipped the scales (and our hearts). 7 days later we received negative results on a sweat test. After praying much to John Paul the Great, we claim Colin to be a miracle of JPII's intercession. Colin is shy and a follower. He religiously carries 3 silky blankets affectionately called his "blue b's" with him everyone he goes (think Linus from Charlie Brown). He says "my" instead of "I" in all of his sentences. He adores being a little brother.