Confession: This is my newest fascination: the veil that separated the sanctuary (otherwise known as the Holy of Holies) in the Jewish temple and the rest of the church. I found this great video with some history in it to use for a station at religious ed. tonight called "Journey to the Cross."
Have a 'holy' Holy Week. Journey to the Christ as we enter the Triddum (latin for three days).
Tiffany
Wednesday, March 31, 2010
Tuesday, March 30, 2010
Wednesday, March 17, 2010
What Faith Can Do
Confession: I've been thinking about a new montage for this year's CF Great Strides, but that's about as far as I've gotten with that. Just thought about it.
Then, this morning on the way to work this song game on. Ok. I'll do it, Lord.
Check it out (the song that is). Montage to come in a week or so...
Listen: http://www.youtube.com/watch?v=pO6DXOsKOw4
Lyrics: What Faith Can Do (Kutless)
Everybody falls sometimes
Gotta find the strength to rise
From the ashes and make a new beginning
Anyone can feel the ache
You think its more than you can take
But you are stronger, stronger than you know
Don't you give up now
The sun will soon be shining
You gotta face the clouds
To find the silver lining
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
It doesn't matter what you've heard
Impossible is not a word
It's just a reason for someone not to try
Everybody's scared to death
When they decide to take that step
Out on the water
It'll be alright
Life is so much more
Than what your eyes are seeing
You will find your way
If you keep believing
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
Overcome the odds
You don't have a chance
(That's what faith can do)
When the world says you can't
It'll tell you that you can!
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
That's what faith can do!
Even if you fall sometimes
You will have the strength to rise
Then, this morning on the way to work this song game on. Ok. I'll do it, Lord.
Check it out (the song that is). Montage to come in a week or so...
Listen: http://www.youtube.com/watch?v=pO6DXOsKOw4
Lyrics: What Faith Can Do (Kutless)
Everybody falls sometimes
Gotta find the strength to rise
From the ashes and make a new beginning
Anyone can feel the ache
You think its more than you can take
But you are stronger, stronger than you know
Don't you give up now
The sun will soon be shining
You gotta face the clouds
To find the silver lining
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
It doesn't matter what you've heard
Impossible is not a word
It's just a reason for someone not to try
Everybody's scared to death
When they decide to take that step
Out on the water
It'll be alright
Life is so much more
Than what your eyes are seeing
You will find your way
If you keep believing
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
Overcome the odds
You don't have a chance
(That's what faith can do)
When the world says you can't
It'll tell you that you can!
I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
That's what faith can do!
Even if you fall sometimes
You will have the strength to rise
Tuesday, March 2, 2010
I might be insane (slightly).
The kids had their check-ups on Friday all 28 days post treatments (the ones going all the way back to January). Cayden won the gold with a weight gain of one pound and a height gain of one inch! All since late December. Amazing. Trinity didn't even place. Only 4 oz. More "fattening" up for her. More butter, more shake mixes, more whole milk!
Confession: I am a glutton for punishment.
Trinity FINALLY is at baseline and not on antibiotics so she could finally start the hypertonic saline study for infants. See previous blogs for more info on this. Basically its an approved treatment for older kids and adults with CF but has not been tested in infants as of yet. That's where Trinity comes in. The treatment is fairly similar to TOBI, twice a day after therapy. Yes, it means more work but it also means excitement for the CF world. Until 4 years ago, this simple treatment was a best-kept secret for Australia surfers who had CF but couldn't figure out why they were so much more healthy and less frequent hospital stayers. The connection was the salty water they ingested from surfing. Such a simple solution! The study is 48 weeks long, but fairly simple. No hard core diaries like Cayden's enzyme study we did this past summer. We have to keep all the vials though and record any health/medication changes. The study coordinator commented on how cool a kid Trinity is. She totally is. She sits ALL by herself and holds the neb. mask if I need to get the other kids ready in the morning. So precious is our Trinity. The study coordinator is also the person that does the sweat tests with infants to diagnose CF. We made a deal with her: we do the study, you give us a negative test result in May!!! The staff at the Children's hospital is our second family.
We've made it to week 3 of Chris working out of town. This week we're staying over night at his hotel. It's great to be away from home! Thank you for your prayers. They make our days (and nights) much smoother. Baby 4 will be here in t-minus 9 weeks :)
Confession: I am a glutton for punishment.
Trinity FINALLY is at baseline and not on antibiotics so she could finally start the hypertonic saline study for infants. See previous blogs for more info on this. Basically its an approved treatment for older kids and adults with CF but has not been tested in infants as of yet. That's where Trinity comes in. The treatment is fairly similar to TOBI, twice a day after therapy. Yes, it means more work but it also means excitement for the CF world. Until 4 years ago, this simple treatment was a best-kept secret for Australia surfers who had CF but couldn't figure out why they were so much more healthy and less frequent hospital stayers. The connection was the salty water they ingested from surfing. Such a simple solution! The study is 48 weeks long, but fairly simple. No hard core diaries like Cayden's enzyme study we did this past summer. We have to keep all the vials though and record any health/medication changes. The study coordinator commented on how cool a kid Trinity is. She totally is. She sits ALL by herself and holds the neb. mask if I need to get the other kids ready in the morning. So precious is our Trinity. The study coordinator is also the person that does the sweat tests with infants to diagnose CF. We made a deal with her: we do the study, you give us a negative test result in May!!! The staff at the Children's hospital is our second family.
We've made it to week 3 of Chris working out of town. This week we're staying over night at his hotel. It's great to be away from home! Thank you for your prayers. They make our days (and nights) much smoother. Baby 4 will be here in t-minus 9 weeks :)
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